Tuesday, November 19, 2013

Maintenance (Remission) within touching distance


Celia has had her last intensive chemo session before we enter the final phase which is called maintenance (remission). We are not out of the woods however as this phase lasts 2 years and involves monthly chemo and lumbar punctures every 3rd month but it will be so much more manageable. Her hair is really noticeable now and she hardly ever wears headscarves any more so her confidence is growing daily. Unfortunately so is her stroppiness and now she is overtaking Max in the tantrum stakes.
I picked up the dreaded Gastro bug last week and then I passed it to Max so he has been sick for the past 3 days and Celia is not happy about someone else getting attention and sympathy!


We did manage to have a family outing to Santa's Magic Kingdom however as Challenge Cancer Charity gave us free tickets and the kids loved it as it was their first time at the circus. The giant penguin seemed to be their favourite bit though!





  I was on the receiving end of Challenge's generosity on Saturday as well as they held a cancer mums Christmas lunch at one of most beautiful vineyards I have been to here (Yering Station in the Yarra Valley).

Amy and I at Beautiful Yering Station



I got to talk to a lot of mums that I hadn't meet before as there were only 3 of us from Monash cancer centre, all the rest were from the Royal children's hospital, and once again I realised just how lucky we were and how unbelievably well Celia is progressing with her treatment. Some day I will tell some of the other children's stories but right now it would feel like tempting fate so I will hold off.


The Monash Mums - Amy, Me and Niki
The weather, food, wine and company were all wonderful so a heartfelt thank you to Challenge and to Ann who owns Yering Station as she makes this lunch possible every year as she was a cancer mum herself (and thanks for the beautiful table flower arrangement which I also won!)

Finally I wanted to tell you about a lovely lady that we bumped into for the first time a few weeks back at the local farmers market. Anita is pregnant with her third and we got chatting as she will soon have 3 kids with a similar age gap to mine. When she found out that Celia had leukaemia she insisted that she wanted to fundraise for our chosen charity and true to her word that is exactly what she has done - she ran 14kms in the City to Sea run on Sunday and raised $1000 for the Childrens Cancer Centre Foundation. I have yet to meet with Anita and say thank you in person even though she lives just a few streets away but Anita, if you are reading this I promise I will arrange something soon!

Anita at the finishline - well done you and bump!




1 comment:

  1. So pleased to hear that Celia is in the maintenance stage. Such a beautiful little girl. Let's definitely catch up in the next week or two. I was so happy to have been able to offer some support. X

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