It was this day last year that Celia was diagnosed with Leukaemia and to mark it we spent the day at an outdoor pool where Celia swam like a fish and ran around like a mad thing which just emphasises how far she has come in a year.
We didn't take any photos as she actually looks pretty awful right now. The rash on her face from the chemo is at its worst and she has big dark rings under her eyes as she's not sleeping very well and school is generally just taking its toll. Unfortunately, the teasing has continued (about her hair and now the rash too) and most mornings she has been crying going into class and won't let go of my hand.
Last Thursday I had the very awkward task of telling two of the parents that their children had been teasing Celia since her teacher obviously wasn't doing anything about it, so we will see if that helps matters.
We had a lovely day on Saturday when one of the cancer charities put on a pirate cruise for the kids at Willamstown yacht club. It was so heartening to see how confident and fun loving Celia is around her 'cancer friends' as opposed to the painfully quiet and timid girl she is at school. Max had a ball too as they armed the kids with water pistols and shooting bad pirates is now his favourite activity!
Mabel continues to make us all laugh as she is at that stage where within 2 bars of any song she is jigging along to the music and both Celia and Max adore her and say she is their best friend.
I am still struggling to find enough hours in the day as the kinder work is constant - last week I had a committee meeting, council strategy workshop plus our annual open day on top of the normal weekly workload of emails, calls and form filling.
We have at long last been granted permanent residency so that has also created a load of extra 'admin' jobs but only 3 more weeks before we go on holiday for 5 days with Louise (Andy's cousin), Deryk and their children - cannot wait!
Oh, I mustn't forget to add a photo of Andy from Friday as he and 3 work colleagues shaved their heads for leukaemia and raised over $11,000 in about 2 weeks! No big sacrifice for Andy as he didn't have that much hair to loose plus his motivation was of course extremely close to his heart but for his female colleague Kate I think it took real guts, and as you can see she actually looks a lot better bald than Andy!
We didn't take any photos as she actually looks pretty awful right now. The rash on her face from the chemo is at its worst and she has big dark rings under her eyes as she's not sleeping very well and school is generally just taking its toll. Unfortunately, the teasing has continued (about her hair and now the rash too) and most mornings she has been crying going into class and won't let go of my hand.
Last Thursday I had the very awkward task of telling two of the parents that their children had been teasing Celia since her teacher obviously wasn't doing anything about it, so we will see if that helps matters.
We had a lovely day on Saturday when one of the cancer charities put on a pirate cruise for the kids at Willamstown yacht club. It was so heartening to see how confident and fun loving Celia is around her 'cancer friends' as opposed to the painfully quiet and timid girl she is at school. Max had a ball too as they armed the kids with water pistols and shooting bad pirates is now his favourite activity!
Mabel continues to make us all laugh as she is at that stage where within 2 bars of any song she is jigging along to the music and both Celia and Max adore her and say she is their best friend.
I am still struggling to find enough hours in the day as the kinder work is constant - last week I had a committee meeting, council strategy workshop plus our annual open day on top of the normal weekly workload of emails, calls and form filling.
We have at long last been granted permanent residency so that has also created a load of extra 'admin' jobs but only 3 more weeks before we go on holiday for 5 days with Louise (Andy's cousin), Deryk and their children - cannot wait!
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| Andy and his colleague Kate after the Big Shave |
Oh, I mustn't forget to add a photo of Andy from Friday as he and 3 work colleagues shaved their heads for leukaemia and raised over $11,000 in about 2 weeks! No big sacrifice for Andy as he didn't have that much hair to loose plus his motivation was of course extremely close to his heart but for his female colleague Kate I think it took real guts, and as you can see she actually looks a lot better bald than Andy!
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