Celia is now a week in to the "Delayed Intensification" phase of her treatment. As the name suggests this 8 week period sees an increase in the frequency and volume of chemotherapy. As expected the combined effects of the steroids and the chemo are starting to take their toll on her body again. The last few days have see a return of the lethargy, the emotional extremes (aggression, clinginess) and a little shakiness in the legs. However, it is nowhere near as bad as first time round and at least we know she comes out of it again.
This time she has steroids one week on, one week off, so from tomorrow we have a steroid-free week. Hopefully she'll perk up a little by the weekend.
Yesterday, I had a day off to take my turn on hospital duty as Celia needed to go in all day from 9am to 6pm for Asparaginase (a particularly strong chemo that she only gets a few times during her entire treatment). The trauma of leaving mum to allow dad to take her to hospital was worse that the day of cancer treatment itself. The tears started the minute she woke up, increased in intensity over breakfast and turned into hysteria as we drove in the car to hospital. Thankfully she had calmed down by the time we arrived and we actually had a reasonably calm day with lots of drawing and playing with lego between treatments. After a long day she needed carried to the carpark but she managed to stay awake long enough to enjoy some of mum's bolognaise when we got home. Thankfully, her appetite has remained fairly good throughout her treatment to date.
Tomorrow I'm having another dad hospital day - hopefully just for a couple of hours this time - as she goes in for her regular vincristine chemo. Fingers crossed for a few less tears as we leave mum at home again.
This time she has steroids one week on, one week off, so from tomorrow we have a steroid-free week. Hopefully she'll perk up a little by the weekend.
Yesterday, I had a day off to take my turn on hospital duty as Celia needed to go in all day from 9am to 6pm for Asparaginase (a particularly strong chemo that she only gets a few times during her entire treatment). The trauma of leaving mum to allow dad to take her to hospital was worse that the day of cancer treatment itself. The tears started the minute she woke up, increased in intensity over breakfast and turned into hysteria as we drove in the car to hospital. Thankfully she had calmed down by the time we arrived and we actually had a reasonably calm day with lots of drawing and playing with lego between treatments. After a long day she needed carried to the carpark but she managed to stay awake long enough to enjoy some of mum's bolognaise when we got home. Thankfully, her appetite has remained fairly good throughout her treatment to date.
Tomorrow I'm having another dad hospital day - hopefully just for a couple of hours this time - as she goes in for her regular vincristine chemo. Fingers crossed for a few less tears as we leave mum at home again.
No comments:
Post a Comment