I was amazed at how quickly Celia perked up once the steroids stopped last Wednesday - one day I was having to carry her and the next she was jumping around asking to go to kinder so in anticipation of it being the last weekend this winter where she'd be in good spirits we headed up to mount Baw Baw on Sunday. It's just under 3 hours drive away so a bit of a trek for not much snow but as Max has never seen snow and Celia can't remember seeing it, we thought it was worth it. They enjoyed the tobogganing but got tired after about 2 hours. Mabel didn't crack a smile all day but neither did she cry so that is a positive response in my books! We were back in hospital for chemo yesterday and Celia is really struggling with having her port accessed. She is OK with the drugs being administered but getting the needle in is a major ordeal these days. When nothing the play therapist tried would calm her down, it was just a case of 3 of us holding her down and Celia screaming the place down which isn't going to bode well for the next time we go for chemo.
As of last night she is back on the steroids and less than 24 hours later they have kicked in. I thought I should take a photo so that we can capture the ups and downs of her journey and pictorially chart her progress but this caused a tantrum and she covered her head and face and screamed at me to take the camera away so I think I underestimated how much the change in appearance has affected her. When I see the teenage girls in the cancer ward my heart really does go out to them and their parents - God knows those years are hard enough as it is. I am hoping that her hair will start to grow back in about 3 months when the treatment becomes less intense so it's not that far away in the grand scheme of things.
I was amazed at how quickly Celia perked up once the steroids stopped last Wednesday - one day I was having to carry her and the next she was jumping around asking to go to kinder so in anticipation of it being the last weekend this winter where she'd be in good spirits we headed up to mount Baw Baw on Sunday. It's just under 3 hours drive away so a bit of a trek for not much snow but as Max has never seen snow and Celia can't remember seeing it, we thought it was worth it. They enjoyed the tobogganing but got tired after about 2 hours. Mabel didn't crack a smile all day but neither did she cry so that is a positive response in my books! We were back in hospital for chemo yesterday and Celia is really struggling with having her port accessed. She is OK with the drugs being administered but getting the needle in is a major ordeal these days. When nothing the play therapist tried would calm her down, it was just a case of 3 of us holding her down and Celia screaming the place down which isn't going to bode well for the next time we go for chemo. 
As of last night she is back on the steroids and less than 24 hours later they have kicked in. I thought I should take a photo so that we can capture the ups and downs of her journey and pictorially chart her progress but this caused a tantrum and she covered her head and face and screamed at me to take the camera away so I think I underestimated how much the change in appearance has affected her. When I see the teenage girls in the cancer ward my heart really does go out to them and their parents - God knows those years are hard enough as it is. I am hoping that her hair will start to grow back in about 3 months when the treatment becomes less intense so it's not that far away in the grand scheme of things.
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