I'm glad to report we ended last week relatively drama free (well apart from Celia cutting her finger on Max's toenail which sounds minor but because her platelets are so low, it was still bleeding after 4 plasters). The nurse came out to give Celia the thigh injection on Thursday, Friday and Saturday but this time Celia had no problems and even laughed while she did it.
She has been in good spirits but not well enough to go to kinder and she still throws a tantrum if I try to leave the house without her but she is an angel to deal with compared to Max. Max's tantrums are becoming daily and he is at that stage where everything I say is met with "NO, don't want to!" or worse!
We ended the week by going round to our friends Niamh and John's for a delicious Sunday roast and the kids had a ball playing in the glorious Spring sunshine although Celia did get very teary towards the end of the day. Little blood spots (petechial rash) had appeared on her ear that morning, which is sign of extremely low platelets, so I was amazed she held up as long as she did.
We were warned to expect various transfusions over the next 2 weeks so I didn't even bother going to the local hospital today for blood tests. Instead the whole family headed up to the cancer centre and she did indeed need a platelet transfusion (she had her lowest count since second week after diagnosis) but as I said above, this is to be expected at this stage in the protocol.
She has been in good spirits but not well enough to go to kinder and she still throws a tantrum if I try to leave the house without her but she is an angel to deal with compared to Max. Max's tantrums are becoming daily and he is at that stage where everything I say is met with "NO, don't want to!" or worse!
We ended the week by going round to our friends Niamh and John's for a delicious Sunday roast and the kids had a ball playing in the glorious Spring sunshine although Celia did get very teary towards the end of the day. Little blood spots (petechial rash) had appeared on her ear that morning, which is sign of extremely low platelets, so I was amazed she held up as long as she did.We were warned to expect various transfusions over the next 2 weeks so I didn't even bother going to the local hospital today for blood tests. Instead the whole family headed up to the cancer centre and she did indeed need a platelet transfusion (she had her lowest count since second week after diagnosis) but as I said above, this is to be expected at this stage in the protocol.
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