All Celia's blood counts were up last week so we started Interim Maintenance last Wednesday. I was very surprised that there wasn't a delay as Celia's little pal Dominic was delayed by about 8 weeks due to his neutrophil counts being so low.
We were first on the lumbar puncture list so were at hospital for 8am. Unfortunately Celia had another anaesthetic tantrum but they didn't put her back to sleep this time (said there was no guarantee she would wake up differently) so I had to endure half an hour of howling, hitting and kicking until it wore off. Getting the chemo was another drama even though her port had been accessed under the general anaesthetic. She was just exhausted as this didn't happen until 3pm so we had been waiting around for 6 hours.
Looking on the positive side, we have no more chemo for 10 days and her blood results yesterday were excellent.
We also had a lovely two days when Andy's Aunt Gladys and Uncle John came to stay with us. They are holidaying in Australia for 3 weeks with four other couples from home and we spent a beautiful sunny Monday in the Botanic Gardens followed by a lovely meal in Brighton with the whole minibus 'crew' and Andy managed to take two days holiday (which were well earned as he has been working 60 hour weeks recently) We so need to get a few more holidays booked - or cancelled holidays rebooked I should say.....
Celia is in great form these days and asked to go to kinder today so we took in her special cancer beads for 'show and tell'. Every child gets a beaded journey. This gets added to every time they visit hospital with different coloured beads for every procedure. Apparently Celia was so keen to tell her friends all about it she lifted her dress up round her head to show them all her port - that must have been quite a unique show and tell!
We were first on the lumbar puncture list so were at hospital for 8am. Unfortunately Celia had another anaesthetic tantrum but they didn't put her back to sleep this time (said there was no guarantee she would wake up differently) so I had to endure half an hour of howling, hitting and kicking until it wore off. Getting the chemo was another drama even though her port had been accessed under the general anaesthetic. She was just exhausted as this didn't happen until 3pm so we had been waiting around for 6 hours.
Looking on the positive side, we have no more chemo for 10 days and her blood results yesterday were excellent.
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| Celia in Botanic Gardens with Uncle John |
Celia is in great form these days and asked to go to kinder today so we took in her special cancer beads for 'show and tell'. Every child gets a beaded journey. This gets added to every time they visit hospital with different coloured beads for every procedure. Apparently Celia was so keen to tell her friends all about it she lifted her dress up round her head to show them all her port - that must have been quite a unique show and tell!
So pleased to hear that Celia is doing well. How exciting for her to be able to show off her beads at show and tell at kindie. The trip to the botanical gardens looked magical x
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