Thursday, February 13, 2014

A year in pictures


It is not quite a year since Celia got diagnosed but I was feeling reflective so here is the past 12 months in pictures......

This time last year - a normal, carefree 4 year old
Late March - alarm bells rang when I saw her pallor in this photo  


Early April, post diagnosis  - getting her hair bobbed in preparation for the inevitable


Mid April - balding, bloated and unable to walk but amazingly still able to smile


Late April - not able to smile anymore. Unrecognisable.   

early May - The inevitable


Late May - Embracing her new look
June - fed up of feeling 'yucky'


July - visiting her mates at Kinder 



August - getting thigh injections from the home nurse

 September - a nasty fall resulted in a very cut face

October - first signs of regrowth

 November - Our favourite nurse Jody preforming the weekly blood test

 December - Rocking the new pixie cut in maintenance phase

January - starting school

Thursday, February 6, 2014

Celia starts school

I quite often get poked, prodded and slapped courtesy of Max and Mabel but yesterday's metaphorical slap in the face was by far the most painful :-
Celia: "Daddy's intelligent isn't he?"
Me: "Yes.....??"
Celia: "but you're not Mummy"
Me: "Why not?!"
Celia: "Because you don't go out to work, you don't do anything"
Me: "I used to go out to work just like Daddy"
Celia: "Yes I know, you've told me that about 8 times before" (accompanied by a huge eye roll)
Me: Speechless.
This conversation came at the end of a day that had seen Max throw several tantrums, all 3 refuse to eat lunch and dinner (I stupidly tried out some new, exciting, 'kid friendly' recipes) and Mabel screamed nonstop at the top of her lungs, so suffice to say that when Andy got home I wasn't in the best of moods.
So this morning I volunteered to be president of Max's kindergarten (seemed like a great idea at 3am this morning!). Not quite sure where I'm going to find the 12 to 15 hours a week that it supposedly takes or what I'll do with Mabel when I have a council meeting but I'll cross that bridge when I come to it.

As you can see, Madame Celia started school this week and so far, so good.
Her favourite thing about school is the Australia song (singing the national anthem in assembly) and she appears to have made a few friends but says she still prefers to sit on her own (?!).
There haven't been any comments about her short hair which is a relief as there were tears last week about how everyone would think she was a boy and yesterday the teacher read them all a book I'd given her about leukaemia and Celia pulled her dress up and showed everyone her port - not sure that is the best tactic for making new friends!

Max also started 3 year old kinder last week so he does 2 x two and a half hour sessions which is nowhere near enough for him but 5 hours is all the government offers and even that isn't subsidised. I can't believe he would be going to school fulltime in September if we were back in Northern Ireland.

On the health front, Celia's blood results from today were borderline so they want us to keep the daily chemo dosage at 100% but go for another test next week. Hopefully school won't take too much out of her but I did notice the chesty cough starting up again this afternoon. Fingers crossed....