It has not been the easiest of weeks.
All of a sudden Mabel's nocturnal wanderings (she spends 2 to three hours every night between 1am and 4 being wide awake and refusing to stay in her bed) seem the least of our worries.
Although last Friday was a happy day because Celia got out of hospital, there was also a little bit of sadness too as it was Dr Eva's last day before she left for her new life with her new husband in Zurich. Eva has been Celia's consultant since the week of diagnosis and she is so amazing with her. I am sure there was a tear in her eye when I told her about Celia being teased at school and the advice she gave Celia on how to deal with it was so wise and heart felt that she has actually been ten times more helpful than the resident child psychologist! So next week we get to meet our new consultant - Good luck to them as they will have very big shoes to fill. Thanks for everything Eva.
Since leaving hospital last Friday Celia has had a few teary mornings at school - mainly because all the other children are doing intensive swimming lessons this week and she is not allowed to for fear of infection.
Her blood results on Monday were still low so she is not yet back on chemo.
She's been a bit tired and down generally and we thought signing her up for gymnastics would boost her confidence and give her something to look forward to. She's been talking about it for weeks and really looking forward to joining her friend Sarah in a Friday class after school. She lasted 15 minutes - all of which was spent standing in the middle of the floor, not moving and crying for mummy. Not a great success really. Refund please?
It has subsequently emerged that she has conjunctivitis. Cue lots more tears and hysterics trying to get drops in her eyes. She looks terrible, but should be fine in a day or two...just in time for a week of steroids and lumber puncture if her body can take it
All of a sudden Mabel's nocturnal wanderings (she spends 2 to three hours every night between 1am and 4 being wide awake and refusing to stay in her bed) seem the least of our worries.
Thank goodness for Max! Our terrible twos and stroppy threes monster has become a (comparatively) model four year old. Well done for coping with the craziness and emotion all around you son! And I don't just mean from your siblings.
