Too many drugs for a 4-year-old

Leukemia week one complete and we're all still hanging in there.
I'm sure there will be many tough days ahead but today was definitely the first really really hard one for Celia. The poor darling started her day at 5.30 am with a blood test and followed this up with some steroids and oral chemotherapy at breakfast time. Straight after breakfast she had a 3-hour blood transfusion, supported by some morphine. By lunchtime she moved on to another major dose of chemotherapy (Asparaginase) - the only one of this type she will have all month. By dinner her drug cocktail had really ramped up to include

• More steroids
• Allupunona to reduce uric acid in her blood
• Boctrim, which is to prevent bacterial infections in the stomoch
• Ranitidine, to prevent gastric ulcers
• Pain relief medication
• More oral chemotherapy
• Laxative
• Two separate mouthwashes to prevent infections through the mouth (4 times a day)

The New Bedtime Routine - Storytime was much more fun than this

Not surprisingly she was conked out and staring at the TV like a total zombee by 4.30pm - refusing to eat, drink, speak or move.
Highlight of the day for everyone was a two minute Facetime conversation between Celia and Max at bedtime that saw both of them beaming from ear to ear as they wished each other goodnight. Oh, and my mum and dad extended their stay by a couple of weeks until the end of Aprilwhich will really really help us out.
Tomorrow is another day! Thank goodness.